tag:blogger.com,1999:blog-2339303059074627867.post4887119488518599739..comments2023-08-25T08:23:59.391-05:00Comments on A miracle in my purse...and other lessons i've learned from my kids: A picture tells a thousand wordsJust a smalltown girlhttp://www.blogger.com/profile/04562245873939567556noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2339303059074627867.post-14142175730915923782007-06-17T19:00:00.000-05:002007-06-17T19:00:00.000-05:00i forgot to mention kat, lisch noduals, look like ...i forgot to mention kat, lisch noduals, look like freckles in eyes and are 100% harmless, and even people without nf can have 1. also theres a lot of freckling in different parts of the eye thats 100% normal. Still praying for you<BR/><BR/>CindyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2339303059074627867.post-32065137347661177942007-06-17T08:53:00.000-05:002007-06-17T08:53:00.000-05:00Katyou know me and my kids have a genetic conditio...Kat<BR/><BR/>you know me and my kids have a genetic condition right (neurofibroamtosis type 1) we have tiny freckle like spots in our eyes. They are called Lische nodules. I have learnt from listening to the othamologist that a lot of non deadly diseases have markings that show up in the eyes. This could simply be a regular type marking. i know its hard but try hard not to panic yet. i am thinking and praying for you.<BR/><BR/>Love and hugs<BR/><BR/>cindyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2339303059074627867.post-86477042571959915202007-06-16T21:14:00.000-05:002007-06-16T21:14:00.000-05:00Kat, im sure he will be fine. I see this ALL the ...Kat, im sure he will be fine. I see this ALL the time in the photo lab. The eye can make different colors when it reflexes. I have had that happen with my kids too. Dont get too upset ok hun!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2339303059074627867.post-28473666397793823092007-06-16T19:29:00.000-05:002007-06-16T19:29:00.000-05:00hey kat. we will totally think of you in our praye...hey kat. we will totally think of you in our prayers. hopefully everything will be fine but as a mom its hard not to fear the worst. please keep us updated. also, congrats on the new job!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2339303059074627867.post-54123175226032556442007-06-16T16:43:00.000-05:002007-06-16T16:43:00.000-05:00P.S. I just found this. I hope it eases your fea...P.S. I just found this. I hope it eases your fears a little.<BR/><BR/>Retinoblastoma is a life-threatening disease, but it is rarely a fatal one if treated appropriately. With the correct treatment in the hands of an experienced ophthalmologist and appropriate follow-up both for eyes and for other cancers, the retinoblastoma patient has a very good chance of living a long, full, and happy life.Mistyhttps://www.blogger.com/profile/13896836765059906122noreply@blogger.comtag:blogger.com,1999:blog-2339303059074627867.post-70228427062306922412007-06-16T16:39:00.000-05:002007-06-16T16:39:00.000-05:00I am not a doctor, but could it be from the way he...I am not a doctor, but could it be from the way he is laying? His right eye is kind of crossed (not crossed really, but looking that way)toward his nose and maybe it is his position that makes it look different. Just a thought. Trying to ease your mind until you get to the opthamologist.Mistyhttps://www.blogger.com/profile/13896836765059906122noreply@blogger.com