Wednesday, December 12, 2007

Why do they do this to me!

Ok so my 9 year old has been having some health problems since the beginning of summer and we've been back and forth from this specialist to that trying to get to the bottom of it all. Yesterday was our visit to the ped gastroenterologist where we learned that he thought Chris might have an inflammatory bowel disease like Chrons or something and wanted to do a endoscopy/colonoscopy and take some biopsies as well as an ultrasound to look for anything like tumors and whatever. It was set up for a month from now.

Today I get a phone call saying that the doc had slept on it and doesn't feel comfortable waiting that long and wanted us in THIS FRIDAY (the hosp is 2.5 hours away) and since Craig can't get the time off that quick they are setting up for next wed or thursday instead, I'm waiting on the call back to say which.

The day before the test will be very interesting because he cannot eat for a full 24 hours. How difficult for a kid! Especially Chris since if he gets hungry he starts getting major belly aches and dizzy. Fun Fun.

Hailey's concert was great. She looked beautiful in her dress and I took some pics when we got home. I'll post em on here just as soon as I get them off the camera.

Nate's still not feeling 100% but he's done with the fevers and the rash is almost gone so hopefully he'll soon be back to his old goofy self.

Still working on that post I mentioned at the bottom of the last, haven't had much time to sit down and work on it.


cindys_weight_loss_blog said...

kat, does christian need to take any bowel preperations before the colonoscopy??? if so be warned they taste vile (grant told me ) and their pretty strong and nasty to your stomach. grant has always had to clean his bowel out before an colonscopy and the stuff to help clean you out makes the stomach cramp bad.

is there anyway your mum or someone could come up and help you?? Its hard enough for an adult to deal with it , let alone a kid.

Anonymous said...

Ok I just stumbled onto your blog this morning. I must say, your son might have Celiac Disease!! I have it. With CD, when you ingest even miniscule amounts of gluten (found in wheat, barley, and rye) your body has an autoimmune reaction. It can present in a million different ways (my husband had gastro issues, while I mainly had neurological malfunctions), but doctors are EXTREMELY hesitant to suggest or test for it (still not sure why). Try googling it, or ask your doc to test for it (the gold standard test is a biopsy, tho false negatives are common), or simply remove gluten from your diet (it's hard because of cross-contamination issues, but could be worth a trial). Anyway, I truly hope they find a solution for your son. I just had to say!!

Kat said...

Thanks for the tip. He has actually been tested for Celiac twice. I didn't realize there were a lot of false negs, I'll run it by his GI doc when we go.

Anonymous said...

Even if your doc dismisses you (which happens a lot, doctors are still being taught that this is REALLY rare. But it isn't. At all), it might be worth it to TRY him on the GF diet. It's hard at first, but you get used to it. Dietary response is just as valid as a biopsy IMHO. Anyway, hope everything turns out for him. Any questions about the GF diet or whatever feel free to E-mail me at oh, and my name's Adelle by the way!!