You all never fail to ground me when my emotion takes over and I'm off on a tangent, you're definitely right, calling the doctor would be the next logical thing to do. I guess I'm just frustrated. It's very hard to have lost a child to a broken organ and then to find out another one is broken too. I guess the problem is for me is that with Alex everything happened so fast all the time, my head would spin. I would finally wrap my head around something and something else would be thrown at me. I would often call Dr D the pink paper pusher because it seemed everytime I turned around he had a consent form in my face for another procedure.
So being use to things moving so fast it's very difficult for me to accept when they aren't. There are all these unknowns with Nathan, will he need a transplant? When? Will we be able to keep his sodium in check with diet alone as he gets older? How will I make sure he gets the opportunity to douse his school lunch in salt so he gets enough? What will people say to him? Everything is an unknown and I'm not use to this and I don't like it.
I need to learn some patience.... how do you do that?
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1 comment:
Your feelings are totally understandable! I can't imagine what you are feeling. I'm sure that saying you are overwhelmed is an understatement!
Again, I think that your doctor sounds wonderful and that he would welcome any of your questions. He might even be able to make you feel a little better, just in knowing that he is there for you and is doing everything he can for your child. I know I always get strength from that.
When I get overwhelmed, I need to remember to take things one step at a time. Good luck!
Feel free to email me if you would like!
Debbi
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